J

J

Saturday, May 31, 2014

May

video
Oskar loves riding his bike and is getting pretty good at it.  We go to the church parking lot about once a week so he can ride around without me having to worry about him getting hit by a car.
We went to Travel Town a week or two ago to look at all the trains.  We got to go inside and look at the engine in one of the trains and we went on a tour through all the different cars.  





I had just given Oskar a bath when he asked to listen to his Sesame Street music.  When I turned it on he just sat down right there and quietly listened for about 10 minutes.  When music is playing, depending on the music, he is captivated by it and will just sit still and listen.

Reading to his friends


We went to a park with friends on Memorial Day and took advantage of the short moments they were sitting down and got some pictures.



I finished the Batman cape!  Oskar loves it and wants to wear it everywhere.



video

Wednesday, May 14, 2014

Update on Oskar

Earlier this week we had another appointment with Dr. See, the pediatric gastroenterologist.  Since meeting with her last time about five or six months ago Oskar has grown about two inches but hasn't gained any weight.  I didn't think that would be too concerning because he's a very busy toddler but she thought it was a bigger deal than I did and has started him on yet another medication, making the total five now, three for reflux and two for asthma.  He's also taking laxatives but hopefully that won't be a long term thing.  Having him on so much medicine is already something I wish we didn't have to do but this new medication has some very scary side effects, tardive dyskinesia being the scariest.  I've not listened to the doctor enough times, been wrong about it, and had enough bad results that even though I don't feel good about this new medicine I'm doing it anyway.  Dr. See says the asthma is caused by the reflux and his lack of growth is also caused by the reflux.  This new medicine will hopefully tighten the muscles that are allowing acid to come up, help with the reflux, and also help the asthma.  He'll have a scope in a few weeks to see how everything is looking generally as well as taking a look at the abnormal cells they found last time.  She also put him on a higher calorie diet where he has a Pediasure in the morning and a meal replacement drink at dinner both taken with his regular meals. All this week since we saw the doctor he hasn't gone to sleep at night without screaming and crying for up to a half an hour, and he is throwing up again when he cries a lot so we're also dealing with that.  I hope all of this will work because I feel like I'm at the end of my rope emotionally dealing with these issues, although I've felt like this many times before and I've found there is more rope left to be discovered.